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Inaugural Canadian Genodermatoses Network Meeting

Do you have a rare genetic skin disease or care for someone who does? Are you a clinician, scientist, or industry representative working on rare skin diseases? Do you want to learn more about the latest research, treatments, and challenges in this field?

If you answered YES to any of these questions, then you are invited to join us for a one-day meeting on rare skin diseases, hosted by the SickKids. This event will bring together patients, families, clinicians, scientists, and industry partners to share their experiences, insights, and vision for the future of rare skin diseases. 

Do you have a rare genetic skin disease or care for someone who does?  Are you a clinician, scientist, or industry representative working on rare skin diseases?  Do you want to learn more about the latest research, treatments, and challenges in this field? If you answered YES to any of these questions, then you are invited to join us for a one-day meeting on rare skin diseases, hosted by the SickKids. This event will bring together patients, families, clinicians, scientists, and industry partners to share their experiences, insights, and vision for the future of rare skin diseases.  The meeting will feature:   Keynote speakers from leading experts in rare skin diseases Panel discussions on topics such as diagnosis, management, advocacy and innovation Breakout sessions for networking and collaboration Registration:  The meeting is free to attend, but registration is r equired (scan the QR code)! If you are an industry representative and would like to sponsor a family to attend, please email:   This email address is being protected from spambots. You need JavaScript enabled to view it.    If you are a parent/patient and would like to be sponsored for attending the event, please email:  This email address is being protected from spambots. You need JavaScript enabled to view it. Space is limited, so register early to secure your spot.   Let’s work together to improve the lives of people with rare, genetic skin diseases.See you there!

GPP Patient event

GPP Virtual Patient Summit

Are you living with GPP or care for someone who does? The Canadian Skin Patient Alliance, the Canadian Association of Psoriasis Patients and the Canadian Psoriasis Network are working together to learn how to better support patients in Canada who are living with GPP.  Join us for a special GPP Patient summit to share your experiences.

Building on the GPP Charter, the goals of the virtual summit are to:​

  • Bring together GPP patients from across the country ​
  • Help patient organizations better understand the needs and priorities of GPP patients and how these needs can be met​
  • Establish opportunities for advancing the need and priorities of GPP patients in Canada​
  • Provide insight into supporting the broader rare skin disease patient community 

 

Event Date: September 2023

Affiliate Member Meeting

CSPA invites all Affiliate Member organizations to participate in an Alliance-wide meeting this November. 

Affiliate Members Meeting: November 16-17, 2023

Details to come!

Breaking Barriers 2024

CSPA presents Breaking Barriers: Bolstering mental health and resiliency among skin patients. Join us for a two-evening, virtual event December 4 and 5 to learn about how you can manage your mental health and wellbeing while navigating life with a skin, hair, or nail condition! Session 1: December 4, 2024 - 6-8 PM ET Dr. Dayna Lee-Baggley, Registered Clinical Psychologist sharing insights and coping strategies for managing life with a chronic disease. Panel discussion with Dr. Lee-Baggley and dermatology patients. Session 2: December 5, 2024 - 6-8 PM ET John Westhaver, resiliency expert and burn survivor sharing tools on resiliency.Panel discussion with John Westhaver and dermatology patients. To register and reserve your spot today, complete the short registration form at: https://bit.ly/breaking-barriers-2024. This event will be held in English. We appreciate the support of Sanofi,  Janssen, Bausch, and AbbVie for making this event possible.

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