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FIRST: Foundation for Ichthyosis and Related Skin Types (USA) - http://www.firstskinfoundation.org/about-ichthyosis
American Academy of Dermatology (USA) - https://www.aad.org/
American Society of Gene and Cell Therapy (USA)- https://www.asgct.org/
Coalition of Skin Diseases (USA) - http://www.skincoalition.org/
National Organization for Rare Disorders (USA) - http://www.rarediseases.org/

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