If you are living with Neurofibromatosis or know someone who is, you may want to stay up-to-date on the condition as well as current treatments and news.  

Our Affiliate Member

1200255348642514.7u72gYPsC52C9mV8ZFwJ height640Tumour Foundation of BC 


There are many organizations specialized in this regard for individuals with NF1, such as:

  • Neurofibromatosis, Inc. (
  • The Neurofibromatosis Clinics Association (
  • The Children’s Tumor Foundation (
  • The Neurofibromatosis Association of UK (
  • Association de la Neurofibromatose du Québec (French only)